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Familial Dysautonomia Online Auction

Familial Dysautonomia Foundation
September 2022
08:00 AM MST
November 2022
06:03 PM MST
GOAL $25,000.00
202.4% REACHED!

Familial Dysautonomia Online Auction

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Meet your host family: THE STILLMANS

Hosts Hank Arens and the Stillman family are raising funds and awareness to support the Familial Dysautonomia Foundation, in honor of their daughter Pyper, who was born with this ultra-rare genetic disorder which affects the autonomic and sensory nervous systems.

This year the Stillman family home was selected by Phoenix Home & Garden as a VIP stop on its annual self-guided tour of spectacular private homes. As a part of this tour we are hosting a silent auction with an assortment of unique items to bid on weather you are virtual or in-person!

To learn more about Familial Dysautonomia and how it impacts Pyper’s life we invite you to visit their website: familialdysautonomia.org

About Familial Dysautonomia Foundation

Familial Dysautonomia Foundation: the leader in FD treatment and research

OUR MISSION - To raise funds and operate programs to pursue the best possible medical treatment, scientific research, public education and social services for the benefit of those affected with or at risk for familial dysautonomia.

- Research funded by the FD Foundation identified the FD gene in 2001. Genetic testing, now available to all, means thousands of healthy babies born every year to carrier families.
- Scientists working with the Foundation are currently pursuing a number of promising treatments aimed at slowing or stopping progression of the disease and are optimistic that one or more may soon be ready for testing in the clinic.
- Researchers studying FD are also learning about the cellular and molecular pathways that cause neuronal death in Alzheimer’s, Parkinson’s, ALS and multiple sclerosis; treatments for FD may be effective in these more prevalent diseases as well.

Learn More