Run Renegade Run

Rare diseases are often life-threatening and most do not have FDA approved treatments or cures. In many cases, treatments and cures that show a lot of promise, like CRISPR, are simply too specialized and not able to get the kind of pharmaceutical investment they need to succeed.

Billions of dollars are spent on disease research every year. But funding for rare disease research, interventions and cures often have to focus on individualized solutions and are simply not economical. As a result, they often get overlooked and neglected. Rare Disease Renegades is here to help that research and those cures get the funding they desperately need.

Rare Disease Renegades was established in 2021 by William Lester and Michelle Werner who had a vision to accelerate science towards cures for rare diseases like the one their son was diagnosed with, Duchenne muscular dystrophy. The Rare Disease Renegades supports scientific research programs developing the newest therapies. We seek to ensure long, healthy, happy lives for children with rare diseases in the United States through funding of research for cutting edge therapies and life-changing technologies.

We are aware of the unique challenges that the rare disease community faces on a daily basis and are committed to finding new avenues to advance research and development.