NFED 20th Anniversary Halloween Bash Second Chance

Ryan who was born with an ectodermal dysplasia that left him with 70% of his skin eroded at birth. This severe erosion was a serious health issue for his early years of life and required round the clock treatment. Thankfully, they were able to connect with a team of doctors to care for Ryan’s numerous medical needs.

In 2001, along with a 50 member event committee, they decided to give back to the National Foundation for Ectodermal Dysplasias (NFED) by hosting the first Halloween Bash to raise awareness, develop better treatments, fund research and help all families affected by ectodermal dysplasias.

To date, the Halloween Bash has raised over $4 million for the NFED thanks to the generosity of people like you. Our goal is to raise $100,000 this year to ensure that everyone affected by these disorders live happy and healthy successful lives.

Today Ryan is a happy 21 year old who enjoys sports and school thanks to the loving support of our family, friends, and to the Halloween Bash contributors.

We have six items left from the original auction for you to bid on in our Second Chance Halloween Bash online auction. This auction is open from 9AM EST on November 2 to 3 PM Eastern Standard Time on November 16.

From all of us at the NFED and the Geismar family, thank you for impacting the lives of those affected by ectodermal dysplasias.

Please visit our NFED Halloween Bash page below to see our online Journal and/or make a donation.

https://www.nfed.org/halloween-bash

Thank you!

Ectodermal dysplasias are a series of rare disorders that typically inhibit development and function of the teeth, nails, hair and sweet glands. Ectodermal dysplasias also can affect the skin, lens or retina of the eye, parts of the inner ear, development of fingers and toes, and nerves. Each syndrome usually involves a different combination of symptoms.

The National Foundation for Ectodermal Dysplasias (NFED) is the worldwide expert on ectodermal dysplasias and the only advocacy organization in the United States dedicated to those living with these disorders. The mission of the NFED is to empower and connect people touched by ectodermal dysplasias through education, support and research.