Song in My Heart Williams Syndrome Workshop

Tshirt preview3 s550
START
21
May 2014
08:30 PM EDT
END
29
May 2014
09:30 PM EDT
RAISED
$7,477.00
GOAL $7,000.00
106.8% REACHED!

About Our Auction

I'm raising funds to help bring parents from all over Ontario together at Sick Kids on August 9th to learn from leading Williams Syndrome experts and connect with other parents. It's been almost 20 years since parents in Toronto connected this way.
My daughter Alma has Williams Syndrome. Williams syndrome is a rare genetic condition that is present at birth and can affect anyone. It is characterized by medical problems, including cardiovascular disease, developmental delays, and learning disabilities. These occur side by side with striking verbal abilities, highly social personalities and an affinity for music.


About Williams Syndrome Workshop

Williams syndrome is a rare genetic condition that is present at birth and can affect anyone. It is characterized by medical problems, including cardiovascular disease, developmental delays, and learning disabilities. These occur side by side with striking verbal abilities, highly social personalities and an affinity for music. Williams syndrome affects one in between 10,000 and 20,000 births.
You can watch a introduction to Williams Syndrome here: https://www.facebook.com/photo.php?v=10200138264953962
Here in Ontario, many parents who receive the diagnosis have no local resources and no one to turn to. This summer we're bringing parents from all over Ontario together at Sick Kids to learn from leading Williams Syndrome experts and connect with other parents.

Learn More