Team Olivia Kay

Team Olivia Kay/United Leukodsytrophy Foundation
START
07
September 2014
10:00 AM EDT
END
14
September 2014
09:00 PM EDT
RAISED
$2,268.00
GOAL $3,000.00
75.6% To Goal

About Our Auction

All proceeds from this auction go to the United Leukodystropy Foundation.
The United Leukodystrophy Foundation (ULF), incorporated in 1982, is a nonprofit, voluntary health organization dedicated to providing patients and their families with information about their disease and assistance in identifying sources of medical care, social services, and genetic counseling; establishing a communication network among families; increasing public awareness and acting as an information source for health care providers; and promoting and supporting research into causes, treatments, and prevention of the leukodystrophies. Leukodystrophies are a group of genetic nervous system disorders affecting the myelin sheath, which insulates the axon through which nerve impulses are conducted. The ULF is supported solely by donations.


About Team Olivia Kay/United Leukodsytrophy Foundation

Team Olivia Kay is named after Olivia Kay Borodychuk who is a 5 year old little girl from Dewitt MI, who battles a very rare form of Leukodsytrophy called Alexander Disease. There are only 200 published cases of Alexander disease. Children are usually diagnosed around the age of two and the average life span of a child is 5-7 years. Our auction is designed to raise funds for a cure/research for Alexander Disease and all the profits are donated to the United Leukodsytrophy Foundation in honor of Olivia.

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